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CdM Charity Donation To Fund UCLA Research Facility
posted: November 11th, 2009 14:31 pm |
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A local charity has donated the seed money for a UCLA facility that will focus on Duchenne muscular dystrophy, the most common and most deadly form of the disease.
Debra Miller, president and founder of CureDuchenne, presented a $200,000 check to UCLA earlier this week. The facility will include a clinic and research facility.
“Finally, 600 boys with Duchenne muscular dystrophy will have a clinic in Southern California where they can receive optimum care and where leading edge research will take place which to help these boys have a future,” Miller said today.
The money for the donation came from last month’s Dealing for Duchenne poker tournament, which raised $450,000. Read our coverage of the event here.
Debra and Paul Miller of Corona del Mar founded CureDuchenne in 2003, a year after learning that their only son, now 12, has the disease. The disease has no cure, and most children with it will die before they leave their teens. The Millers decided that prognosis was unacceptable; they have raised more than $5 million, and they have funded projects that have made it to three active clinical trials.
Late this summer, several CureDuchenne supporters climbed Mount Rainier to raise money. Read our stories about that climb, and the organization, here and here.
