Tickets Available for CureDuchenne Gala

posted: January 21st, 2013 12:27 pm | 0No Comments

The annual Champions to CureDuchenne Gala, which will honor supporters Scott and LIsa Niedermayer, will take place Feb. 9 at the Balboa Bay Club & Resort, organizers said.

Clay Matthews, linebacker of the Green Bay Packers, is expected to make an appearance, organizers said.

Individual tickets cost $350 and tables of eight cost $2,500; to purchase tickets call (949) 872-2552. The event’s dinner menu has been planned by Stan Frazier, former drummer for rock band Sugar Ray and co-owner of A Restaurant, organizers said.

The gala also will honor Scott and Lisa Niedermayer for their support, said Debra Miller, co-founder of CureDuchenne, a Corona del Mar-based charity.

“Scott and Lisa Niedermayer are true champions to CureDuchenne,” Miller said. “They are compassionate and supportive of CureDuchenne’s focused efforts to fund promising research to find a cure for this devastating disease.”

Scott Niedermayer was recently named assistant coach of the Anaheim Ducks. According to a CureDuchennne statement, he is the only individual to win every major North American and international championship including the Memorial Cup, World Junior Championship, World Championship, World Cup, four Stanley Cups and two Olympic gold medals.

“Niedermayer has supported CureDuchenne by climbing Mt. Shasta and the Grand Tetons, as well as participate in a golf tournament, to raise awareness and funds,” the statement said. “Lisa Niedermayer has served on the Newport Beach Gala committee and inspired others to get involved. Lisa’s cousin has FSHD, a form of muscular dystrophy, and she is also an advocate for that disease.”

Duchenne is a progressive muscle-wasting disease that affects one in 3,500 boys, organizers said. Boys are typically diagnosed by the time they are 5 years old and are in wheelchairs by age 12. Most do not survive their mid-20s.

All proceeds of the Champions to CureDuchenne Gala will benefit CureDuchenne, a charity dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy.

In other CureDuchenne news, Clay Matthews has donated his two Super Bowl tickets to benefit CureDuchenne, according to a news release.

The proceeds of the charity auction will fund CureDuchenne research. The package includes a four-night hotel stay at the Best Western French Quarter Landmark Hotel in New Orleans and two tickets to the Feb. 3 game.

To bid, click here.

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