Music Power Event to Raise Awareness, Funds for Duchenne Muscular Dystrophy

posted: November 13th, 2012 05:49 am | 0No Comments

Corona del Mar High School graduate Dusty Brandom once was an aspiring musician; Duchenne muscular dystrophy has weakened him and he no longer can hold an instrument.

But his love of music continues to drive Brandom, 20, who helped organize a musical fundraising event that will take place at 6:30 p.m. Thursday, according to a news release.

Tickets for the event cost $30, or $20 for anyone under the age of 25. To purchase tickets, click here.

The Music Power event will be held at the Tapas Bar and Grill at 4253 Martingale Way in Newport Beach and hosted by Coalition Duchenne, whose founder is Brandom’s mother, Catherine Jayasuriya.

Featured musicians include the family’s former guitar teacher, Pat Hennessy, Kings Road featuring Terry Lawless and the Lucky Lonely, a band with a strong connection to the family; drummer Michael Bedard accompanied Brandom in Lincoln Elementary School talent shows.

“When he was younger, Dusty was an aspiring guitarist and songwriter nurtured by Bedard,” according to the release. “Now he does not have the strength to hold a musical instrument.”

Brandom’s brother, Lucas, 17, also will play bass with Kings Road during the event.

Brandom has been in a wheelchair since he was 10 years old. At 20 years old, he feels fortunate to be alive, his mother said.

“Tragically many Duchenne boy’s lives are cut short due to pulmonary and cardiac issues,” she said in a statement. Each year, 20,000 boys are born with Duchenne, the statement said.

The Music Power event also will feature the first showing of the movie trailer for “Dusty’s Trail – Summit of Borneo.” The documentary was filmed during a fundraising and awareness climb on Mt. Kinabalu; read our earlier story here.

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